ABSTRACT
The pandemic took its toll on memory clinics with many forced to close or scale back their services. This led to lengthening waits for dementia assessment and left many without a diagnosis.
ABSTRACT
The aim of this study was to explore the experience of family care-givers of people with dementia during the COVID-19 pandemic in the Veneto region of Italy to understand how and to what extent the emergency has affected care-givers' lives and care routines. Twenty adult children of an ill person were interviewed via phone and video call, in adherence with the restrictions against COVID-19. Thematic analysis showed five main themes: the care-giver's experience, the care recipient's experience, relationships with care recipients, changes in the care routine and resources. Results pointed out that the time needed in the care routine and everyday activities increased during the pandemic, together with the need to find alternatives to physical activity at home. Depending on one's personal experience of COVID-19 and approach to preventive rules, the availability of resources, and formal and informal support, three main approaches to care were identified: apprehensive, mindful and fatalistic ones. The pandemic amplified the differences among these already-existing approaches to care as well as the typical challenges and difficulties experienced by family care-givers, and it resulted in an increased burden connected to practical difficulties, emotional stress and difficulties in reaching for help. These results underline the importance of strengthening the external support network for older people to help family care-givers, especially during emergencies.
ABSTRACT
Research involving the residents of care homes is vital to improve their health and wellbeing. Such research can make a major contribution to the health and social challenges facing society, including dementia and ageing. However, research is less common in the care context than in health settings. Studies submitted to the Health Research Authority over a 3-year period for ethics review were analysed to identify ethical barriers to research. Just 0.5% of research studies that were submitted involved care homes. The most common subjects researched were residents' wellbeing, COVID-19 and care home processes and management. Analysis of the response of research ethics committees showed that the majority of questions or comments concerned the consent process, care and respect for the participants, and the social and scientific value of the planned research. There were a number of issues that were commonly raised by research ethics committees. In addition, the majority of studies involved adults who potentially lacked capacity. This work identifies the issues that are raised by research ethics committees and highlights specific ethical concerns about research in the care setting.
ABSTRACT
Purpose: This clinical focus article examines the effect of social isolation and loneliness forced by the pandemic on the geriatric population. Since March 11, 2020, when a global pandemic was declared, a new concept of social distancing has swept the United States and the world. While these efforts have been challenging for the entire population, there has been a disproportionate effect on minority groups, low-income communities, and one especially vulnerable group that has emerged: older adults. Method: A review of existing scientific research on social isolation and loneliness in the aging population was conducted. Current demographic data on the aging population were gathered to determine clinical applicability of research evidence. Principles of bioethics were considered within a risk/benefit assessment related to SARS-CoV-2 (COVID-19). Social determinants of health were examined within the context of the pandemic. Results: Research supports the link between social isolation, loneliness, and negative outcomes in older adults. The COVID-19 pandemic has increased the prevalence of these negative effects, including anxiety/depression, neuroinflammation, substance abuse, physical or nutritional deficits, and a decline in overall health. Conclusion: Strategies to mitigate the negative effects of social isolation may include technological intervention, attendance at virtual events, socially distanced outdoor activities, family connection, and cognitive stimulation or leisure tasks.